Tissue Donation

Archived Tissue Donation

Once you or your child are enrolled in the TRRI Registry, the Registry coordinator will reach out to your treating institution(s) to inquire about archived tissue availability. If you are not enrolled in the Registry, and are interested in joining, please contact us at 844-722-8774 (Option 2) or TRRI@cchmc.org.

Fresh Tissue Donation

In order to develop tumor models, researchers need viable tissue to work with in their labs. The tumor models developed are a vital component to developing potential therapeutic agents to treat TFE Renal Cell Carcinoma. If you have a patient interested in donating tissue to the Registry, please direct them to follow the steps below.

How patients can donate tissue to the TRRI Registry

  1. Enroll on the TRRI Registry
  2. Contact the registry at 844-722-8774 (Option 2) or TRRI@cchmc.org and provide the following information:
    1. Name of hospital or place of procedure (biopsy or surgery)
    2. Name of surgeon and/or primary oncologist
    3. Date of planned or prior procedure
  3. Registry staff will promptly follow up with your patient and/or their family if further information is needed, and then coordinate proper collection and shipment of samples.